Monday, March 24, 2014

This will probably be confusing because, frankly, I'm a little confused.  Having said that, on to some facts:

Jimmy's temp has gone from 104 to normal.

His heart rate was very erratic this morning, and is more regular.

His oxygen and sedation have been lowered, but he has remained completely sedated.

Dr. Lonial and Dr. Saral came this afternoon and sat down  with the children and me and we discussed the situation.  These doctors are part of the cancer team that has overseen our care for seven years and their viewpoint is at odds with the one we got from the pulmonologists Saturday.  The pulmonologists basically said they had done all they could do but put Jimmy on a ventilator and they didn't recommend that.  They sent the hospice people in.

Jimmy has a terminal cancer but it is being managed.  He has developed irreversible fibrosis and scarring in his lungs, but they say there are things we can do to slow and manage that.  The acute crisis is this respiratory infection, and they can't find what's causing it.  Nothing is growing in the petri dishes.  Are the antibiotics he had earlier this month masking the culprit? They still have been unable to confirm whether it is bacterial, viral or fungal.  Some of the treatments can be dangerous and they don't want to take a perilous route if they don't even know if they're going in the right direction.  I'm paraphrasing this but it is my interpretation of what they were saying.

Long story short, they want to do another bronchoscopy, get more samples and do some more investigating. It won't be as difficult a procedure this time because he is already intubated and his oxygen saturation is up.

Jamey and I have another concern: what if we DO pull Jimmy back from the brink, but to what kind of life? What if he says I told you no life support and you put me on a ventilator? Why did you set me up for more suffering?  I'm praying but I'm not sure what I'm praying for.  We all just want more time with Jimmy, but I guess I'm ultimately praying for God to do what's best for him.




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