Not one of our better days

I hope today gets better.  Yesterday was a big day for Jimmy, and he was exhausted.  I expected both of us to get a good night's sleep, but it was not to be.  Jimmy talked all night; maybe he was talking in his sleep but it was gibberish that went on and on and on.  Several times he pulled the oxygen tube out of his nose and his oxygen saturation dropped way low and he started gasping for breath. I'd get up and go put it back on him, but in a little while he'd do it again.

He started the morning confused and out of it, but able to answer basic questions. I managed to feed him about 3 oz. of a nutritional custard-y thing they brought in, and a little juice with a thickener in it that he can swallow more easily than plain liquid.

At about 11, a physical therapist came in to work with him to help him regain some strength.  He was able to follow commands, raise his arms, squeeze her hands, and then she got him to sit on the side of the bed. By then he was struggling to get his breath, and his lips and fingers were turning blue.  I grabbed my little oxygen meter thing and put it on his finger and it showed an oxygen level of 68 and a pulse rate of 132.  The therapist freaked and called the nurse who called other people in. They put a mask on him and gave him albuterol and cranked up the oxygen and finally got his oxygen saturation back to a normal level.

After everybody left, Jimmy was resting, still wearing the mask but then starting taking it off again.  I tried to put it back on him but he wouldn't turn it loose, and would slap my hands when I tried to take it from him.  He tried to get out of the bed, saying he was ready to go home, so I had to call the nurse to help me.  He's agitated and combative and having hallucinations.

Jamey came in about 12 and I left him with it.  I may for the first time have to get a sitter who can stay there all night and stay awake and keep Jimmy safe.  I am so tired and am afraid to go to sleep for fear he'll get the mask off again. I really don't know what's going on right now - maybe it's a 2 steps forward, 1 step back sort of thing. I'm going back to the hospital soon to try to sort things out.