August 20, 9PM. It has been a long day. We were at the clinic for almost twelve hours, starting at 7:30 this morning. His white cell counts were still low, only 2.2, but Dr. Lonial decided to go ahead with the cytoxin anyway. Jimmy tolerated it very well. I have to set the alarm clock for a couple of times during the night to give him some pills that help to prevent damage to his urinary tract. Then Wednesday I have to start giving him shots (Neupogen and Leukine) twice a day for seven days to stimulate his body to produce more stem cells. If all goes well, the stem cell collection will start next Monday and will take up to four days, depending on how quickly we can collect enough cells. They want to collect enough stem cells for two transplants. The cells will then be frozen and stored for if and when they are needed.
I'm going to bed. The alarm goes off in less than four hours.
6 comments:
Hang in there and know that there are a lot of lots of friends thinking of you and sending good wishes your way.
I think this is as bad as it gets.
You'll survive. Ellen, this web site is very well done. Who knew? Super Techno Ellen.
Jimmy, Tough up and get back to work!
Thanks for starting this, Ellen. Max isn't always the best at relaying information. I hate we weren't able to meet up last week, but hopefully we will see you both soon! -elizabeth
Hang in there. See you soon.
So good to hear from you . We think of you often and wish we could be with you. Best love and hugs from Abaco. Hang tough and know we love you.
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